You have come to the right place, and we are glad you are here. This is a safe place to share stories of love and loss, devastating grief, exhausting care-giving, memorials, advanced directives, mourning, hope, and despair. We want to hear about about what you wish you had known or done differently, what you wish those around you had known or done differently, and what went right. We will never tell you to move on or find closure. "What cannot be said will be wept." Sappho
Saturday, September 30, 2017
The Leisure Seeker Trailer #1 (2018)
Helen Mirren and Donald Sutherland play a couple facing memory loss and aging in "The Leisure Seeker," coming in 2018.
Wednesday, September 20, 2017
The Inspired Funeral
There is a thoughtful, wise new resource about death and dying online: The Inspired Funeral. Highly recommended. From the home page:
When death looms, we are all lost children. This is when we long for ritual and ceremony to help us honor our humanity and feel held by something larger. We've found some of our favorite readings to share with you, and ceremony templates to help you envision what might be possible. Use them to create what fits the dying or deceased person you are honoring, your family and friends. We welcome you to build a loving, digital obituary here too. If you need more personalized support, please reach out for help.
7 Ways To Save Money When You Die | HuffPost
When I was in the government, I worked on the rule described here that requires disclosure of funeral costs. Note the main point below -- what you spend on the funeral is not a reflection of your feelings for the person who has died. Increasingly, families are choosing simple, ecologically friendly funerals with simple, unpolished wood caskets or cremation.
Dying can be an expensive proposition, and when the death of a loved one occurs, nobody is in the mood to go comparison shopping or start hunting down deals. The median cost of a funeral home’s services is $7,180, according to 2015 data from the National Funeral Directors Association. But that’s just the funeral home.
Add to that cemetery costs, grave-digging and grave markers, and Parting.com says the average funeral in the U.S. can cost more like $10,000. And the Federal Trade Commission says even that may be underestimating things. Sometimes, $10,000 barely covers the cost of a casket alone ― especially if you were thinking mahogany or copper. But there are ways to save money on your death. And remember, the amount of money someone spends on a funeral bears no correlation to how much the deceased was loved. Practical people die too.
7 Ways To Save Money When You Die | HuffPost
Sunday, September 17, 2017
What Not to Say to Bereaved Parents (reprinted with permission)
6 Things We Need To Stop Saying
To Bereaved Parents
To Bereaved Parents
Joan Markwell knows the gut-wrenching, hollow feeling left behind when a child is taken too early. It’s a feeling that mothers have experienced recently and throughout the last few years after tragic attacks in Orlando, Manchester, London, San Bernardino, Calif., and Charleston, S.C., just to name a few.
With every new tragedy, vigil, story on the news or anniversary recognizing these events, plenty of mothers like Markwell – who lost her adult child to cancer – feel the sting of the wound that accompanies their loss. While that wound may have healed, there is still a scar left as a reminder of the pain that still lives on for many grieving family members, including mothers who are surviving with that pain in many different ways.
“When a mother loses a child, the grief dictates her life,” says Markwell, author of the book Softening the Grief. “You don’t see an end to the pain. As the body reacts to the stress you feel, physical pain follows. Sleep is out of the question.”
It’s a grief that only they understand, however, and one that others usually don’t know how to deal with. “The first time we meet a friend since the death of our child occurred can be frightening,” says Markwell, “It’s not that we don’t want to see them; we just can’t face anyone without tearing up.” To avoid those awkward situations, Markwell offers up some phrases you should avoid saying to grieving parents and instead offers alternatives:
- “You Are So Strong.” In reality we are exhausted from trying to look strong. Try this instead: “I know it’s hard to be strong right now. I’m here for you to lean on anytime. I have an open heart and time to listen.”
- “Be Glad You Have Other Children.” We may have other children, but they cannot replace the child we’ve lost. Try this instead: “No child is replaceable, but I hope having your surviving children around you helps in easing the pain of your loss.”
- “You’re not the first mother who has lot a child.” Yes, but this is the first time I’ve lost my child. Try this instead: “I know mothers who have lost children and how much they grieved. That has made me aware of what a fight this is for you. You will continue to be in my thoughts.”
- “My child almost died, I know how you feel.” If you said this, you only had a clue about how it might feel to lose a child. Try this instead: “My child had a close brush with death, which was terrifying enough. There can be no comparison to actually losing a child.”
- “Time heals all wounds.” In time the mind covers wounds with scar tissue and pain lessens. But it’s never gone. Try this instead: “I hope in time your pain and grief will soften. Knowing it will take time, I stand beside you for the long haul.”
- “Everything Happens for a Reason.” There is never a good enough reason as to why our children were taken. Try this instead: “It goes beyond reason for any child to be taken from a mother. There was certainly no good reason to lose yours.”
“These awkward but common questions and statements can trigger a world of grief for bereaved mothers,” says Markwell. “When talking to a grieving parent about their lost child, it’s best to take a step back and choose your words carefully.”
About Joan E. Markwell
Joan Markwell is a small business and real estate owner who resides in Lawrenceburg, Ky. She is a former board member of the Lawrenceburg (Ky.) Chamber of Commerce, former board member of the Spencer County (Ky.) Tourism Board and former vice president of the National Association of Women in Construction, Bluegrass Chapter (Lexington, Ky.). Markwell lost her daughter Cindy – who was a mother of two herself – to cancer in 2013. Cindy’s children, Lucas and Samuel, are a big part of Markwell’s life, as is her son, Kris Fields.
Thursday, September 14, 2017
When You Lose Someone You Love -- A New Book from Joanne Fink
Joanne Fink's new illustrated book, When You Lose Someone You Love, is a touching reminder that just when we feel most alone, we can reach out to find compassion and understanding. It will be released October 10, 2017 from CompanionHouse Books.
Tuesday, September 12, 2017
John Cleese on Death
New York Magazine's Vulture: Is death funny?
John Cleese: It is. Death is certainly present in my life, and there’s humor to be mined from it. Somebody was saying to me last week that you can’t talk about death these days without people thinking you’ve done something absolutely antisocial. But death is part of the deal. Imagine if, before you came to exist on Earth, God said, “You can choose to stay up here with me, watching reruns and eating ice cream, or you can be born. But if you pick being born, at the end of your life you have to die — that’s non-negotiable. So which do you pick?” I think most people would say, “I’ll give living a whirl.” It’s sad, but the whirl includes dying. That’s something I accept.
John Cleese on Monty Python and Political Correctness:
John Cleese: It is. Death is certainly present in my life, and there’s humor to be mined from it. Somebody was saying to me last week that you can’t talk about death these days without people thinking you’ve done something absolutely antisocial. But death is part of the deal. Imagine if, before you came to exist on Earth, God said, “You can choose to stay up here with me, watching reruns and eating ice cream, or you can be born. But if you pick being born, at the end of your life you have to die — that’s non-negotiable. So which do you pick?” I think most people would say, “I’ll give living a whirl.” It’s sad, but the whirl includes dying. That’s something I accept.
John Cleese on Monty Python and Political Correctness:
Sunday, September 10, 2017
Saturday, September 9, 2017
A gentle parting eases the pain of death
"I knew her for only a few hours, yet I can never repay her kindness. I don’t even know her name. But during those frightening final hours, as we watched Dad slip away, she discreetly, gently held us together, answering our bewildered questions, asking us about his life, even — incredibly — making us laugh.
With a calm quiet reassurance that so many palliative care nurses possess, honed by years spent easing the sick from this world, she transformed our truly distressing situation into an almost comforting farewell.
Where and how someone dies has a profound effect on those left behind and often dictates how they cope with the loss.
Witnessing the death of someone you love is a mixed blessing. Nothing can prepare you for the brutal emptiness that fills the room when life has departed...There’s no such thing as an easy death. I hope when my time comes I will have few regrets. I hope I can look into the eyes of those I love and have them know the priceless comfort and joy they have brought me during my life, right to the end."
A gentle parting eases the pain of death:
A gentle parting eases the pain of death:
The Hard Work of Not Fixing
"We are fixated on fixing. When I was a hospice chaplain, I always thought I had the best job in the office. The hospice staff diverged from the medical model, devoting its best practices to keeping the patients comfortable at a point along the living-dying continuum when all the treatment options had been exhausted and none of them was working any longer. Still, there were a great many questions to ask, problems to solve. The nurse had to figure out which medication would alleviate George’s intractable nerve pain and which would help him sleep when he was overwhelmed by anxiety. The social worker had to assess Margaret’s caregiving team to determine if her husband and daughter were up to the challenges. I had no such agenda. I was not required to bring my laptop with me when I visited patients and their families. I was just there, doing the hard job of not fixing."
seventysomething: When it's time to stop fixing life's holes | PBS NewsHour
seventysomething: When it's time to stop fixing life's holes | PBS NewsHour
Grief In The Classroom: 'Saying Nothing Says A Lot' : NPR Ed : NPR
[H]ow should educators handle the death of a student's loved one? A new website — GrievingStudents.org — is trying to help teachers and school leaders answer that question. It's a database of fact sheets, advice and videos...."The teachers want to know exactly what and what not to say to a student." And that's the challenge: Most teachers aren't trained social workers. Which is why Luz Minaya welcomes the extra resources. She teaches Spanish and technology at a public middle school in New York City. The 17-year teaching veteran says she received "no training" for how to deal with student grief. "You go to college and you study to become a teacher. But no one tells you how to deal with the emotional aspect of students," Minaya says. Her school has a large population of Latino students. Many are very close to their grandparents, Minaya says, and when an elder dies, she's seen that grief affect behavior, attendance and performance. "Teachers really have a major role in the safeguarding of the student," Minaya says. "I don't want to have to depend on the guidance counselor or wait for the social worker who comes once a week." The Coalition's new site includes lots of guidance for teachers that's refreshingly specific, like this: Avoid comparisons. Saying "my father died, too" shifts attention to a competing loss and away from the grieving student. Also, avoid trying to comfort a student with any sentence that begins with "at least." Educators shouldn't try to make light of the situation or find good in the sad, says Schonfeld. The teacher's goal should be to support grieving students by making clear to them that they are safe and have someone to talk to.
Grief In The Classroom: 'Saying Nothing Says A Lot' : NPR Ed
Tuesday, September 5, 2017
Sally Quinn on her husband Ben Bradlee's struggles with dementia in his final years - The Washington Post
"I was devastated by Ben’s change in attitude and behavior toward me. His personality had always been sunny and optimistic. Suddenly he had become moody, downbeat, and in some instances outright hostile. Nobody else saw that side of him. It was only directed at me. I was crushed by the changes in him. They had come on gradually, but now it was clear that this behavior was intensifying and not going away.
He didn’t like the idea of being “put on the couch.” He also didn’t like to be on the defensive, which he definitely was once I described the situation from my point of view. Ben seemed a bit confused when he heard me relate our problems, as though I were talking about somebody else, not him...It had been five years since he had been diagnosed with early-stage dementia, but few outside the family knew it."
Sally Quinn on her husband Ben Bradlee's struggles with dementia in his final years - The Washington Post:
Sally Quinn on her husband Ben Bradlee's struggles with dementia in his final years - The Washington Post:
Friday, September 1, 2017
The Day I'll Finally Stop Grieving
I’ve realized that Grief doesn’t just visit you for a horrible, yet temporary holiday. It moves in, puts down roots—and it never leaves. Yes as time passes, eventually the tidal waves subside for longer periods, but they inevitably come crashing in again without notice, when you are least prepared. With no warning they devastate the landscape of your heart all over again, leaving you bruised and breathless and needing to rebuild once more. Grief brings humility as a housewarming gift and doesn’t care whether you want it or not. You are forced to face your inability to do anything but feel it all and fall apart. It’s incredibly difficult in those quiet moments, when you realize so long after the loss that you’re still not the same person you used to be; that this chronic soul injury just won’t heal up. This is tough medicine to take, but more difficult still, is coming to feel quite sure that you’ll never be that person again. It’s humbling to know you’ve been internally altered: Death has interrupted your plans, served your relationships, and rewritten the script for you. And strangely (or perhaps quite understandably) those acute attacks of despair are the very moments when I feel closest to my father, as if the pain somehow allows me to remove the space and time which separates us and I can press my head against his chest and hear his heartbeat once more. These tragic times are somehow oddly comforting even as they kick you in the gut.
The Day I'll Finally Stop Grieving
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