"We understand that the goal of medicine today is to keep you alive. A cynic might say that as long as the patient is alive, there are billable procedures to be performed. Dead patients aren’t paying customers. I’m not that cynical, but I also don’t believe that most doctors know how to talk to families or patients about end-of-life care and how to plan for it. My husband’s doctor seemed genuinely shocked when I asked if he could just ignore the restrictive renal diet and just eat what he wants. I was serious. Why not? His kidneys have failed and aren’t coming back. How is a baked potato (on the forbidden list) going to make that any worse?
So yeah, my husband and I spent hours going through his directive. We understand the importance of staying calm while we discuss these things. We talk to our kids about quality of life and the hard choices people sometimes have to make. We talk endlessly about living life to the fullest in the gaps between treatments.
Yep, we understand it all. But understanding it doesn’t make it any less hard on our hearts."
Making End-Of-Life Care Decisions Is About As Real As It Gets | Huffington Post
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