You have come to the right place, and we are glad you are here. This is a safe place to share stories of love and loss, devastating grief, exhausting care-giving, memorials, advanced directives, mourning, hope, and despair. We want to hear about about what you wish you had known or done differently, what you wish those around you had known or done differently, and what went right. We will never tell you to move on or find closure. "What cannot be said will be wept." Sappho
Wednesday, April 26, 2017
Friday, April 14, 2017
Wind Telephone – Ōtsuchi-chō, Japan - Atlas Obscura
Wind Telephone – Ōtsuchi-chō, Japan - Atlas Obscura
Thursday, April 13, 2017
Sheryl Sandberg's New Book About Loss is Option B
In the early weeks after Dave died, I was shocked when I’d see friends who did not ask how I was doing. I felt invisible, as if I were standing in front of them but they couldn’t see me. When someone shows up with a cast, we immediately inquire, “What happened?” If your life is shattered, we don’t.People continually avoided the subject. I went to a close friend’s house for dinner, and she and her husband made small talk the entire time. I listened, mystified, keeping my thoughts to myself. I got emails from friends asking me to fly to their cities to speak at their events without acknowledging that travel might be more difficult for me now. Oh, it’s just an overnight? Sure, I’ll see if Dave can come back to life and put the kids to bed.
I ran into friends at local parks who talked about the weather. Yes! The weather has been weird with all this rain and death.
Many people who had not experienced loss, even some very close friends, didn’t know what to say to me or my kids. Their discomfort was palpable, especially in contrast to our previous ease. As the elephant in the room went unacknowledged, it started acting up, trampling over my relationships. If friends didn’t ask how I was doing, did that mean they didn’t care? My friend and co-author Adam Grant, a psychologist, said he was certain that people wanted to talk about it but didn’t know how. I was less sure. Friends were asking, “How are you?” but I took this as more of a standard greeting than a genuine question. I wanted to scream back, “My husband just died, how do you think I am?” I didn’t know how to respond to pleasantries. Aside from that, how was the play, Mrs. Lincoln?
At first, going back to work provided a bit of a sense of normalcy. But I quickly discovered that it wasn’t business as usual. I have long encouraged people to bring their whole selves to work, but now my “whole self” was just so freaking sad. As hard as it was to bring up Dave with friends, it seemed even more inappropriate at work. So I did not. And they did not. Most of my interactions felt cold, distant, stilted. In the moments when I couldn’t take it, I sought refuge with my boss Mark Zuckerberg. I told him I was worried that my personal connections with our coworkers were slipping away. He understood my fear but insisted I was misreading their reactions. He said they wanted to stay close but they did not know how. The deep loneliness of my loss was compounded by so many distancing daily interactions that I started to feel worse and worse. I thought about carrying around a stuffed elephant but I wasn’t sure that anyone would get the hint. I knew that people were doing their best; those who said nothing were trying not to bring on more pain, those who said the wrong thing were trying to comfort. I saw myself in many of these attempts—they were doing exactly what I had done when I was on the other side. I thought back to a friend with late-stage cancer telling me that for him the worst thing people could say was, “It’s going to be O.K.” He said the terrified voice in his head would wonder, How do you know it is going to be O.K.? Don’t you understand that I might die? I remembered the year before Dave died when a friend of mine was diagnosed with cancer. At the time, I thought the best way to offer comfort was to assure her, “You’ll be O.K. I just know it.” Then I dropped the subject for weeks, thinking she would raise it again if she wanted to. Recently, a colleague was diagnosed with cancer and I handled it differently. I told her, “I know you don’t know yet what will happen—and neither do I. But you won’t go through this alone. I will be there with you every step of the way.” By saying this, I acknowledged that she was in a stressful and scary situation. I then continued to check in with her regularly. As people saw me stumble at work, some of them tried to help by reducing pressure. When I messed up or was unable to contribute, they waved it off, saying, “How could you keep anything straight with all you’re going through?”
In the past, I’d said similar things to colleagues who were struggling, but when people said it to me I discovered that this expression of sympathy actually diminished my self-confidence. What helped was hearing, “Really? I thought you made a good point in that meeting and helped us make a better decision.” Bless you. Empathy was nice, but encouragement was better.
I finally figured out that I could acknowledge the elephant’s existence. At work, I told my closest colleagues that they could ask me questions and they could talk about how they felt too. One colleague said he was paralyzed when I was around, worried he might say the wrong thing. Another admitted she’d been driving by my house frequently, not sure if she should knock on the door. Once I told her that I wanted to talk to her, she finally rang the doorbell and came inside.
When people asked how I was doing, I started responding more frankly. “I’m not fine, and it’s nice to be able to be honest about that with you.” I learned that even small things could let people know that I needed help; when they hugged me hello, if I hugged them just a bit tighter, they understood that I was not O.K.
Sheryl Sandberg: Read an Excerpt From Option B | Time.com
Choosing To Die - A Personal Story - www.phyllisshacter.com
Choosing To Die - A Personal Story - www.phyllisshacter.com
Tuesday, April 11, 2017
I Learned The Hard Way That You Can't Take A Vacation From Grief | The Huffington Post
I Learned The Hard Way That You Can't Take A Vacation From Grief | The Huffington Post:
Nurses Ignore Hospital Regulations To Grant Dying Man His Final Wish | The Huffington Post
Nurses Ignore Hospital Regulations To Grant Dying Man His Final Wish | The Huffington Post:
Saturday, April 8, 2017
Cancer Taught Me To Live Like I'm Dying | The Huffington Post
Cancer Taught Me To Live Like I'm Dying | The Huffington Post
Celebrating Life When Death Draws Near
"So-called living funerals are "on the rise," says Denise Carson, author of Parting Ways (University of California Press, $35), which explores alternatives to traditional end-of-life mourning rituals. "Some look like a cross between a wedding and a funeral," she says. These celebrations provide an opportunity for someone who is near death to gather close friends and relatives and share memories. No rules or customs govern these get-togethers. They can take place anywhere, from a community center to a church or synagogue to a funeral home. "I've seen the honoree dressed in everything from a hospital gown to a tuxedo," Carson says. "Others are more somber, with prayers, psalms, anointing and last rites by clergy." Some attendees bring mementos, such as photos from a family vacation, or poems to recite. In the 1997 bestseller Tuesdays With Morrie by Mitch Albom, the book's subject, Morrie Schwartz, who knows his death is imminent, holds a living funeral in his home because he doesn't want to miss out on tributes to himself.
Celebrating Life When Death Draws Near
How to Make a Shiva Call | My Jewish Learning
How to Make a Shiva Call | My Jewish Learning:
Tuesday, April 4, 2017
Funeral homes and the death industry are undergoing radical shifts toward DIY death — Quartz
In the words of Amy Cunningham, a lecturer and in-demand funeral director in the New York City area, “We’ve mastered the wedding—but the funeral needs a lot of work....The funeral industry may have assumed it was safe from the whims of supply and demand; everyone dies, after all. But modern consumers are educating themselves and demanding more. If the funeral industry is to survive the 21st century, it will need to shed its old ways and begin to participate in open, frank discussions around what we truly want out of life—and death.”
Funeral homes and the death industry are undergoing radical shifts toward DIY death — Quartz:
Monday, April 3, 2017
Sunday, April 2, 2017
Physical Intimacy and the Dying - SevenPonds BlogSevenPonds Blog
Physical Intimacy and the Dying - SevenPonds BlogSevenPonds Blog