Tuesday, December 17, 2019

End of Life University: Making Hard Times Less Hard for Others

Podcast: How to Make Difficult Times Better as a Death-Aware Person


5 tasks to make difficult times better:
Be willing to show up when things fall apart
Be a safe container
Be a deep listener
Be a truth-teller
Be a way-shower

Sunday, December 15, 2019

What does it mean to create new life when one parent is dying?

Caitlin Gibson writes about the poignant choice to create new life when one parent has a terminal diagnosis:

Ben Boyer can still picture the expression on his wife’s face that night six years ago, as they talked over dinner at their favorite Italian restaurant in London. It had been four years since Xenia Trejo had been diagnosed, at the age of 33, with a malignant brain tumor that doctors said would eventually end her life. But as she sat across the table from Ben that evening, Xenia radiated joy. She felt strong, and after numerous rounds of treatment, her doctors had just told them that Xenia’s tumor was stable enough to do something she had long dreamed of: pursue a pregnancy. Now Xenia was asking Ben, What do you think? Should we try?

...

These are distinctly modern stories. For couples who confronted grim diagnoses before the turn of the millennium, the option to preserve their fertility was much harder to find and less likely to succeed. But the ability to freeze and test embryos improved dramatically in the early 2000s, bringing with it complex existential questions. What would it mean to have a baby in these circumstances for the parent who would die? For the parent who would live? For their child?


Dean -- A Movie with Demetri Martin and Kevin Kline About Loss

Washington Post: My terminally ill mother wanted to end her own life. What would it take to fulfill her last wish?

Tim Zimmermann writes about his mother's assisted death in Washington DC, the great difficulty they had in filling the prescription, and her determination to die on her own terms:

On a Sunday evening in July 2018, my 81-year-old mother raised a small red glass to her lips. In it was a mixture of water, grape juice and 10,000 milligrams of Seconal powder, a massively fatal dose of a barbiturate most commonly used for insomnia. She was sitting up in a hospital bed in her Washington, D.C., home, bathed in warm early evening light and wearing a thin white nightgown. She had spent the weekend calling close friends and loved ones to say goodbye, and chatting and passing time with me, my sister and all her grandchildren....According to the D.C. Department of Health, my mother was one of two D.C. residents to kill herself last year using the 2016 Death With Dignity Act. (A third, Mary Klein, the law’s most vocal citizen-advocate, also took her own life but for some reason does not show up in the department’s statistics.) The law, which allows terminally ill patients to end their lives with a fatal dose of drugs prescribed by a doctor, puts Washington at the leading edge of humane end-of-life options: Only nine states plus the District — and just a handful of countries — allow medical aid in dying.... As she approached her 80s she had already decided that, when the time came, whatever illness or decrepitude she might confront, she wanted to be master of her fate....There was no way she was going to let a disease dictate her fate, or try to hang on day after day while it slowly consumed her. “I want to be remembered as ‘Teeny full of life,’ not ‘Teeny the cancer patient,’ ” she told my sister Quinny.

Sunday, December 8, 2019

The (Planned) Death of a Champion

The New York Times reports on the scheduled death of Marieke Vervoort, a para-athlete, eleven years after initially preparing the paperwork.



[A]fter more than a decade of uncertainty and pain and joy, of opening her private life to friends and strangers and reporters, of inspiring others, of vexing them, of wishing for the end of her life and at the same time fearing it, Vervoort had invited her loved ones to her home for the most heart-wrenching of reasons:

In three days, she had an appointment to die....

There was, also, a faint feeling of uncertainty in the air — an unspoken question of whether this really was the end, a nanoscopic hope that it might not be. Almost three years had passed since two journalists from The New York Times — the photographer Lynsey Addario and I — began spending time with Vervoort to chronicle the end of her life, to observe a top athlete taking control of her destiny in an extraordinary fashion. Being around her during that time sometimes felt like one extended, indefinite goodbye.

She had come close to scheduling her euthanasia on multiple occasions, but had always switched course, found a reason to put it off. Something would come up. Conflicts would emerge. There would be another date to look forward to, another reason to live....

“I’m looking forward to it,” she said of her death. “Looking forward finally to rest my mind, finally have no pain.” She paused. “Everything I hate will be over.”