Mary Talbot writes: "The modern hospice and palliative care movements emerged in compassionate reaction to the pain, loneliness and grief in which so many medicalised deaths end. Set in motion by Dame Cicely Saunders, an Anglican nurse and physician who founded the first modern hospice in 1967 in London, and the psychiatrist Elisabeth Kübler-Ross, whose work with the terminally ill inspired her ‘five stages of grief’ paradigm, these models focus on the psycho-social needs of the dying person and the alleviation of physical symptoms. A good death, from the view of a hospice, includes ‘an open awareness of dying, good or open communication, a gradual acceptance of death, and a settling of both practical and interpersonal business’, writes Beverley McNamara, an Australian sociologist who studies the concept of good death in hospitals and nursing homes. ‘In order for the social and psychological aspects of death awareness and acceptance to take place,’ she adds, ‘the dying person’s suffering should be reduced and they must be relieved of pain.’ Spiritual concerns, too, are taken into account as part of the psychological package, but are not necessarily given more weight than other dimensions of care.
This version of how to die – a sort of hospice ars moriendi – has become the conventional wisdom about what comprises good death among many of the people who study modern dying, or work in the trenches of end-of-life care. I think back to my volunteer training group and the salient themes that recurred in our disparate fantasies. We wanted a minimum of pain and discomfort, a favourite place (usually home), privacy and a congenial ambience (skydiving notwithstanding), our worldly affairs in order, the chance to say goodbye and sew up loose emotional ends with loved ones. A peaceful and, ideally, lucid mind."
In a secular age, what does it mean to die a good death? | Aeon Essays
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