Friday, July 12, 2019

Playing Along With My Dad’s Alzheimer’s Confusion

It is so tempting to tell the truth to our loved ones who are struggling with memory loss, even if it seems cruel to tell them sad or scary news over and over. Increasingly, health professionals and family members are meeting dementia patients where they are.

Lisa Romeo writes in Playing Along With My Dad’s Alzheimer’s Confusion:

Deep down I suppose I sensed there was no value in explaining to him that this was not a hotel, especially because hotels, after all, were places that had always meant refuge and pleasure; places he’d felt comfortable. Hotels were where he’d always been fit enough to swim and smart enough to play baccarat. They were places of beauty, indulgence, and order. I knew in my heart that it was not my duty to make him understand — as if I could — that this was a hospital, that he was broken and sick, and that the only “activities” here were uncomfortable and undignified. What good would it do, I reasoned, to replace his imagined “lousy hotel” conversation with one that was more realistic?

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Personally though, to have hope was about finding a moment — many moments as it turned out — when Dad and I could meet each other on mutually comforting, historically familiar ground. Every time he talked about hotels, I remembered all the lovely days we’d spent in suites and lobbies, at poolside or white-tablecloth restaurants, from Vienna to the Virgin Islands. When he talked of booking a flight or hiring a limo, it busted open the shared vault of family history we’d made together wandering the world. If that past world of ours could serve as a salve for him, in the midst of his psychic turmoil and physical pain, I was more than willing to follow.

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