You have come to the right place, and we are glad you are here. This is a safe place to share stories of love and loss, devastating grief, exhausting care-giving, memorials, advanced directives, mourning, hope, and despair. We want to hear about about what you wish you had known or done differently, what you wish those around you had known or done differently, and what went right. We will never tell you to move on or find closure. "What cannot be said will be wept." Sappho
Sunday, December 15, 2019
Washington Post: My terminally ill mother wanted to end her own life. What would it take to fulfill her last wish?
Tim Zimmermann writes about his mother's assisted death in Washington DC, the great difficulty they had in filling the prescription, and her determination to die on her own terms:
On a Sunday evening in July 2018, my 81-year-old mother raised a small red glass to her lips. In it was a mixture of water, grape juice and 10,000 milligrams of Seconal powder, a massively fatal dose of a barbiturate most commonly used for insomnia. She was sitting up in a hospital bed in her Washington, D.C., home, bathed in warm early evening light and wearing a thin white nightgown. She had spent the weekend calling close friends and loved ones to say goodbye, and chatting and passing time with me, my sister and all her grandchildren....According to the D.C. Department of Health, my mother was one of two D.C. residents to kill herself last year using the 2016 Death With Dignity Act. (A third, Mary Klein, the law’s most vocal citizen-advocate, also took her own life but for some reason does not show up in the department’s statistics.) The law, which allows terminally ill patients to end their lives with a fatal dose of drugs prescribed by a doctor, puts Washington at the leading edge of humane end-of-life options: Only nine states plus the District — and just a handful of countries — allow medical aid in dying.... As she approached her 80s she had already decided that, when the time came, whatever illness or decrepitude she might confront, she wanted to be master of her fate....There was no way she was going to let a disease dictate her fate, or try to hang on day after day while it slowly consumed her. “I want to be remembered as ‘Teeny full of life,’ not ‘Teeny the cancer patient,’ ” she told my sister Quinny.
Friday, December 13, 2019
Sunday, December 8, 2019
The (Planned) Death of a Champion
The New York Times reports on the scheduled death of Marieke Vervoort, a para-athlete, eleven years after initially preparing the paperwork.
[A]fter more than a decade of uncertainty and pain and joy, of opening her private life to friends and strangers and reporters, of inspiring others, of vexing them, of wishing for the end of her life and at the same time fearing it, Vervoort had invited her loved ones to her home for the most heart-wrenching of reasons:
In three days, she had an appointment to die....
There was, also, a faint feeling of uncertainty in the air — an unspoken question of whether this really was the end, a nanoscopic hope that it might not be. Almost three years had passed since two journalists from The New York Times — the photographer Lynsey Addario and I — began spending time with Vervoort to chronicle the end of her life, to observe a top athlete taking control of her destiny in an extraordinary fashion. Being around her during that time sometimes felt like one extended, indefinite goodbye.
She had come close to scheduling her euthanasia on multiple occasions, but had always switched course, found a reason to put it off. Something would come up. Conflicts would emerge. There would be another date to look forward to, another reason to live....
“I’m looking forward to it,” she said of her death. “Looking forward finally to rest my mind, finally have no pain.” She paused. “Everything I hate will be over.”
Friday, December 6, 2019
Monday, December 2, 2019
Edna St. Vincent Millay on What She Misses About Her Mother
The courage that my mother had
by Edna St. Vincent Millay
The courage that my mother had
Went with her, and is with her still:
Rock from New England quarried;
Now granite in a granite hill.
The golden brooch my mother wore
She left behind for me to wear;
I have no thing I treasure more:
Yet, it is something I could spare.
Oh, if instead she'd left to me
The thing she took into the grave!-
That courage like a rock, which she
Has no more need of, and I have.
by Edna St. Vincent Millay
The courage that my mother had
Went with her, and is with her still:
Rock from New England quarried;
Now granite in a granite hill.
The golden brooch my mother wore
She left behind for me to wear;
I have no thing I treasure more:
Yet, it is something I could spare.
Oh, if instead she'd left to me
The thing she took into the grave!-
That courage like a rock, which she
Has no more need of, and I have.
Sunday, December 1, 2019
Doctors are torturing dementia patients at the end of their life. And it’s totally unnecessary.
From The Washington Post, a story by Geoffrey Hosta that is the opposite of the doctors' first imperative: first, do no harm.
Dr, Hosta says most families choose the second option.
I recently tortured an 88-year-old woman with advanced dementia. Her mind was gone. She didn’t know her own name. Like other advanced dementia patients, she suffered incontinence, aggression, immobility, unaddressed pain and more. Her quality of life was dismal.
Her family brought her to the hospital because she had a high fever and was more confused than usual. I knew that she was near her end.
I asked her daughter, son-in-law and grandson what I always ask families managing a relative’s final days: “Do you want us to do procedures that may well be painful and will not improve her quality of life? Or do you want us to let her go in peace?”
Dr, Hosta says most families choose the second option.
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