Tuesday, June 18, 2019

What is a good death? How my mother planned hers is a good road map for me.

The best part of this story, aside from the never-often-enough reminder to communicate our EOL wishes, is the sweet detail of the dementia patient who believed she was the caretaker of another patient.


Most of us avoid thinking about death, which makes a good one harder to come by. Two-thirds of citizens in the United States do not have a living will. Although most Americans say they want to die at home, few make plans to do so, and half will die in hospitals or nursing homes instead — a situation Katy Butler, author of “The Art of Dying Well,” attributes in part to our “culture-wide denial of death.”

Even healthy people need a living will, but many don’t want to think about it.

Specifying what a good death means is especially important for dementia patients, who will lose the ability to express their own wishes as the disease progresses. In the early stages, patients have time to reflect and clarify what they do and do not want to happen at the end of their lives. But these options dry up quickly in later stages.

This means that most families are left with a terrible series of guesses about both medical interventions and everyday care. Are patients still enjoying eating, or do they just open their mouths as a primitive reflex, as one expert put it, unconnected to the ability to know what to do with food? What kinds of extraordinary resuscitation measures would they want medical staff to undertake?



What is a good death? How my mother planned hers is a good road map for me.

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