Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations—a life that was vastly different from the one they’d thought they’d have together—Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy. This book reminds us that our own inner freedom is limitless, regardless of our external circumstances. Updated with new insights and practices hard-won from Toni’s own ongoing life experience, this is a must-read for anyone who is—or who might one day be—sick or in pain.
You have come to the right place, and we are glad you are here. This is a safe place to share stories of love and loss, devastating grief, exhausting care-giving, memorials, advanced directives, mourning, hope, and despair. We want to hear about about what you wish you had known or done differently, what you wish those around you had known or done differently, and what went right. We will never tell you to move on or find closure. "What cannot be said will be wept." Sappho
Wednesday, June 19, 2019
How to be sick : a Buddhist-inspired guide for the chronically ill and their caregivers
Toni Bernhard writes about her chronic illness from the perspective of mindfulness. It does not guarantee peacefulness or happiness or even acceptance. But it does help provide perspective that can make it possible for us to be fully present for ourselves and those who love and need us. Boorstein's book book How to be Sick helps teach us how the metaphors of battle may not help us as much as we hope. With an introduction from therapist Sylvia Boorstein, who has inspired many people with her guidance on mindfulness and her imprecation about dealing with life's challenges: "Don't duck."
Labels:
#YODO,
caregiving,
chromic illness,
EOL
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